Garrett is trucking along with his feedings. He has not spit up ONE TIME since Sunday morning. He actually LOVES the bottle. He attacks it ferociously when we give it to him like he has not eaten in weeks. We have been offering him/letting him take around 50 to 55 mls and putting the rest down his feeding tube. I DO NOT PUSH HIM. I think if he stops eating there is a reason; especially because he no longer has a problem with his suck/swallow/breathe mechanism. He is a pro – he truly amazes his mother.
I read on another CDH mom’s blog something that also rings true to me. She wrote how mothers are supposed to teach their children many things, but her CDH baby has taught her more than anyone could ever understand. I would have to agree with her. Little Garrett has taught me so much. He has taught me that even with poor odds; that odds can really mean nothing. He had me mentally prepared for him to be on life support, only to never need it. He has taught me how to be a mother to a high needs baby. He has taught me to read him and not ‘always’ agree with the doctors and nurses. He has taught me more than most people will ever be able to fully understand.
Fortunately most people will not have to go through what we have these past few weeks. God chose me to be Garrett’s mother for a reason. What that reason is I may never know. I just know that I never ONCE questioned why Garrett is the way he is. I just loved him. I feel that that is the main thing that all babies really want to be anyway -- just loved.
There is no doubt that little Garrett knows that HE IS LOVED and that is why he is responding so well. You're right, that's the primary thing babies, i.e. kids need and Garrett has one of the best moms I know.
ReplyDeleteKeep it up Mommy and Garrett.
Debi Mann
Over the last month I have read but really never responded to any blogs until now...For anyone reading these blogs I want everyone to know that Janna IS one of the most positive, strong people that I have EVER worked with!!! From the first day that she found out that this would be her families path she has not only embraced it but has faced it head on and even with all of this going on never once complained to me or anyone around the office about what she will be facing. there was always the "positive" side that came out. THIS IS WHO JANNA IS!!! SO keep that head up Janna I know you will and we will see you soon at the college.
ReplyDeleteBill
Janna- I know exactly why God chose you to be Garrett's mom- and it's for all the reasons you listed. From the beginning, you have done everything you could to learn anything and everything about CDH, you have shared your family's life with countless others, you have been an active participant in his care, and you have been Garrett's advocate. God knew that he would need a smart, strong, positive, take-charge, and patient mom, so that's what he gave him!
ReplyDeleteAs for the feedings, I couldn't be any happier with his progress. What an amazing lil man he is!