Now we begin the OTHER end of our CDH journey. Now that the repair surgery is done, the next weaning process begins. First we wean on the drugs AGAIN and then we, eventually, wean the ventilator. This process will take weeks most likely. We will have to go up and down and repeat. It is a tedious process with CDH babies. Seeing how much they can handle and if they cannot handle it well, giving them something to help. It is almost like a juggling act.
Once he is weaned off enough stuff, we begin to work on feedings. Which is much more difficult than it sounds in theory with these babies. But first we just FOCUS FOCUS FOCUS on weaning meds and remaining nice and stable.
Paul and I are very thankful for our families. They have been a tremendous help the past week of Garrett’s life. Yes, Garrett is one week old today. Hard to believe. He has had more done to him than some people have in a lifetime.
Garrett will NOT be home anytime soon. His lungs are too small and his pulmonary hypertension is always a problem, as it is with ALL CDH babies. Slowly and surely we hope he gets better and can move towards the ultimate goal of going home.
The Cubs can use a good relief pitcher but they can wait until Garrett's ready. NOW RELIEVING HIS BIGGER BROTHER GRANT, PITCHING FOR THE CHICAGO CUBS, GARRETT CARAVIA!! I like the sound of that.
ReplyDeleteGarrett's done pretty amazing this first week of his life - and here's hoping our little fighter continues to make large strides in fighting his way to being healthy. Meanwhile, his parents are pretty amazing also :)
ReplyDelete(I had to look up what pumonary hypertension was...)
A whole bunch of my kids asked about Garrett and kept asking more and more questions, probably half trying to distract me and half actually super concerned. I had multiple students tell me that they prayed for him last night, they were super shocked that he was only a week old! We are all sending our love, thoughts, and prayers your way!! (Hoping to see Grant with his toddler giggles toward Bad Brad very soon... oh right, his parents are kind of awesome as well)
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He has done extremely well in this first week! I am thinking a shorter hospital stay for Garrett!! keep fighting little buddy!!! ((((hugs))))
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