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Saturday, April 23, 2011

7:30 a.m.

Just called in to check on my munchkin #2 this morning.  He had yet another pretty 'uneventful' night.  I am beginning to not only like that word but love it.

They did have to put him back on the lowest level of Dopamine just to help with his urine output. Considering we have been moving at a pretty good forward pace, one step backwards is completely normal for CDH babies.   However they weaned his Nitric Oxide down from a level 10 to a level 5.  And he seems to be handling that just fine!  From here on out with the Nitric they will wean 1 level at a time from 5 to 1.  They do have to keep him fairly sedated and he does not like to be bothered much by the nurses.  So they leave him alone unless they have to move his position or change a diaper.

Paul headed up early this morning and is up there now.  I am going to get ready and head up for the day a little later this morning. 

Continued thoughts and prayers are always appreciated!  Our little guy is making me very happy.  It is to way to early to be EXCITED, because CDH is ALWAYS a rollarcoaster.  We are still very hopeful for a repair surgery at the beginning of next week.  Our main goal is to get him weaned off as much 'stuff' as possible and keep him stable.  If he stays on the track, Dr. Yang feels we can do the surgery with small incisions, a kind of laprascopic procedure (not quite the right word, but you get the idea).  It is much less invasive and easier on the baby.

I hope to get more pics up this afternoon of our little guy,

~Janna

3 comments:

  1. So happy to hear about your "easy" labor...I am sure that would only happen to you : ) I was cracking up during the whole thing...I can only hear your voices and see exactly the expressions on your and Paul's faces.

    Go Garrett Go! I am so happy to hear that things are going well. He is constantly in our prayers. We love you and and are here if you need anything!

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  2. Thank you for the updates Janna; my family spends our life now checking your blog - our iphone or computer is never far from any of us. Remember if you need ANY help, I can be there in 6 hours. We are keeping our fingers crossed that he continues on the path to recovery, and is able to have the less invasive surgery. Please let Garrett know he is surrounded by love.

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  3. For three days old, he is doing amazing. Im so very happy for you! ((hugs))

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