tag:blogger.com,1999:blog-72127220515964347412024-03-17T20:02:48.608-07:00Our CDH StoryThis blog will follow our family's journey with CDH. Our second child was diagnosed with a congenital diaphragmatic hernia at a routine ultrasound around 17.5 weeks. I started this blog to not only document our journey, but hopefully help those that may have to go through this same journey in the future.Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.comBlogger128125tag:blogger.com,1999:blog-7212722051596434741.post-13262897786791519682011-07-11T14:02:00.000-07:002011-07-18T16:57:22.315-07:00I will never take for granted in my tomorrows, the miracle I hold in my arms today.Well ladies and gentleman this will be my last post on my CDH blog. I am converting back to only updating our family blog.<span style="mso-spacerun: yes;"> </span>Any of my CDH family can feel free to now follow our family blog if you wish to continue to see updates on our entire family, including Garrett of course:<span style="mso-spacerun: yes;"> </span><a href="http://www.thecaraviafamily.blogspot.com/"><span style="color: black;"><span style="color: blue;">www.thecaraviafamily.blogspot.com</span></span></a><br />
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Garrett contintues to thrive. He is still in the 11lb range somewhere and growing a mile a minute.<span style="mso-spacerun: yes;"> </span>Garrett will forever have some ‘health issues’.<span style="mso-spacerun: yes;"> </span>However his issues are minor compared too many CDH babies.<span style="mso-spacerun: yes;"> </span>As said by another CDH mom, “When you have a child with CDH you spend their entire life sleeping with one eye open.”<span style="mso-spacerun: yes;"> </span>She was exactly right.<span style="mso-spacerun: yes;"> </span>You always have to monitor their health and be proactive about issues as they arise.<span style="mso-spacerun: yes;"> </span>Once you are a CDH parent, you are ALWAYS a CDH parent.<br />
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I want to thank everyone that has read my blog as well as any one who reads it in the future. This link will always remain active for reference for future CDH families.<span style="mso-spacerun: yes;"> </span>Garrett is now a part of our family.<span style="mso-spacerun: yes;"> </span>CDH will always be a part of him; however I will never allow it to define him.<span style="mso-spacerun: yes;"> </span>So I decided to wrap up our CDH story.<span style="mso-spacerun: yes;"> </span>Ours had a happy ending.<span style="mso-spacerun: yes;"> F</span>ortunately he was a lucky 1 of 800 babies that lived this year.<span style="mso-spacerun: yes;"> </span>Another 800 babies died in the past year due to the CDH birth defect.<span style="mso-spacerun: yes;"> </span>In writing this blog I hoped to create awareness of a birth defect that I had never heard of until our diagnosis.<span style="mso-spacerun: yes;"> </span>So thank you to each of you who followed Garrett’s story.<span style="mso-spacerun: yes;"> </span>You all helped make this blog worthwhile.Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com8tag:blogger.com,1999:blog-7212722051596434741.post-83134400470662917232011-07-02T17:13:00.000-07:002011-07-02T17:15:36.864-07:00Garrett Talks to Mom<div class="separator" style="clear: both; text-align: center;"><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dy4LyXY2ieskYofchN1piaSc9fkdwsnMvscuoi25MtCBD4LNcy4DEFtY39ZJqUoxYd3bIPZT9950rv4SRRSdg' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: large;">I think he is saying something to the effect of, "Do you have ANY IDEA what I have been through!!!" </span></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: large;">hahhahahahahaha</span></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com4tag:blogger.com,1999:blog-7212722051596434741.post-57653028256608820702011-07-01T10:56:00.000-07:002011-07-01T10:56:50.843-07:00Re-New Born ScreenResults = COMPLETLY NORMAL :)Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com7tag:blogger.com,1999:blog-7212722051596434741.post-70593319824777062912011-06-28T12:31:00.000-07:002011-06-28T12:31:27.326-07:00Discharged From Home HealthGarrett was discharged from his home health visits today! Yipee!<br />
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Weight: 11 lbs 1/2 oz (Last home health visit: 9 lbs. 15 oz. --we skipped the 10 lb range all together apparently)<br />
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Tomorrow morning we go for his regular pediatric check-up and then onto an Echocardiagram at Cardinal Glennon in the afternoon. Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com3tag:blogger.com,1999:blog-7212722051596434741.post-91972090749982050582011-06-27T11:47:00.000-07:002011-06-27T11:47:50.513-07:00Still No ResultsInitially, OF COURSE, the doctors office said we should have the results from Garrett's re-newborn screen by the end of last week. When I called today to inquire, they told me it could take much longer that one week to get them back. I was a little suspicious when the other lady told me they would have them back within a week -- I thought that sounded to good to be true with the timeliness and I was RIGHT ON.<br />
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As soon as I know something it will be posted on here. Thank you everyone for being so concerned about little Garrett! I have a lot of texts, e-mails, etc., inquiring about him and the test results so I wanted to put this post up.<br />
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Garrett enjoying summer with his big brother Grant:<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDuF5BW7Bh0mpdecP7VFqo8v-PiQcTqCFYKTrTDu2vf_GQ_0l1wosDFqEBakpJ2qedz8v39qLteEpAajWbT3p1kyAJDzVYBtvwWd-IwYEr5fgMkumoF-2n_IXH2CmvTyBcWOQBfCr4jIde/s1600/100_4454.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDuF5BW7Bh0mpdecP7VFqo8v-PiQcTqCFYKTrTDu2vf_GQ_0l1wosDFqEBakpJ2qedz8v39qLteEpAajWbT3p1kyAJDzVYBtvwWd-IwYEr5fgMkumoF-2n_IXH2CmvTyBcWOQBfCr4jIde/s320/100_4454.jpg" width="240" /></a></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com1tag:blogger.com,1999:blog-7212722051596434741.post-14723963768136083522011-06-21T21:50:00.000-07:002011-06-21T21:50:16.004-07:00My CDH Miracle<div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I found out at an ultrasound CDH is what you had,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">Nothing could have prepared me for something so unbelievably bad.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">‘Your baby has a 50% chance of surviving’ is what the doctors said,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I had so many scary thoughts running through my jumbled head.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I decided from the beginning to give you the best chance I could,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I knew if you were a fighter, a good chance that you stood.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">Your organs were working against you from the very start,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">They migrated to your chest – stomach pushing on your heart.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">Your lungs could not grow to what they were supposed to be,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">Yet you still grew to a full baby, warm inside of me.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You made a quick entrance into the world one fine day,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">Unfortunately the specialists did quickly whisk you right away.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I did not get to hold you as a normal mother would,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">But I knew it was for the best; and this I understood.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You were such a strong baby; baby boy of mine,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You fought quite the battle, and it took quite a bit of time.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">There were many scary moments, especially for mom and dad,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You came so close to life support; at times we were quite sad.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I sat by your side and watched you fight to stay alive,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I was by your side for always, from the moment you arrived.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I watched you improve to the baby you are today,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I watched the CDH battle slowly moving far away.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">After living on a ventilator, many drugs, and surgery too,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">After 45 days you came home to me, my baby number two.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You have taught me many things my son, too many to explain,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You taught me how to beat the odds, how to deal with all the pain.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You continue to grow stronger with every passing day,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">Continue on this path my son, growing stronger in every way.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">No one can explain why things happen the way they do,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">No one can explain to me why I was given you.</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">You are my miracle; this you will always be,</span></div><div class="MsoNormal" style="margin: 0in 0in 0pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 14pt;">I am happy god has given me you to stay on earth with me.</span></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com7tag:blogger.com,1999:blog-7212722051596434741.post-44574206211007816172011-06-21T12:34:00.000-07:002011-06-21T12:34:39.339-07:002 Months Old<div class="separator" style="clear: both; text-align: center;">Hard to believe Garrett is 2 months old. We took him to my hometown for Father's Day Weekend. My dad's side of the family was very excited to meet him!</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5r3981KRz9CgVvcKKs6zJMW6Ir9I2enBkaNBkTsMmo84wM3RRxla0tv_tS3Qz5v3mwaTu9vre6I7_SERyydHLlcTtwNJRAN4Gv9huQloGu9mSYxiRibxRoxOtY9l-k9WdjeCLDNVHdPyj/s1600/100_4420.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5r3981KRz9CgVvcKKs6zJMW6Ir9I2enBkaNBkTsMmo84wM3RRxla0tv_tS3Qz5v3mwaTu9vre6I7_SERyydHLlcTtwNJRAN4Gv9huQloGu9mSYxiRibxRoxOtY9l-k9WdjeCLDNVHdPyj/s320/100_4420.jpg" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSr3cwjGJQoYcIGi5FYYKoH7shMThKm_QjFK8I-zyN1M1SzhJuLdrS-UbImUTSydk2jYuOxPM1uJYtVR7b47RlOxluP7DlMkbgfiIkq3kkCyqiwyQBv8w6ARXiEMsolh3TB-6u8xkNBBmX/s1600/100_4437.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSr3cwjGJQoYcIGi5FYYKoH7shMThKm_QjFK8I-zyN1M1SzhJuLdrS-UbImUTSydk2jYuOxPM1uJYtVR7b47RlOxluP7DlMkbgfiIkq3kkCyqiwyQBv8w6ARXiEMsolh3TB-6u8xkNBBmX/s320/100_4437.jpg" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikwGGSXhLPESTJ_2apkS7Mbv4ZD9DHxiwe97yBBSVTqWHn2nv-0B3Dvr6c6bJG2Hlae8qV8n0AxiH8ospVS_MmTffdDTBgTLRPW6soA2yUX3veTnDhXO9YkHlaOqa2S-mifi7dXIQRLaZ6/s1600/100_4438.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikwGGSXhLPESTJ_2apkS7Mbv4ZD9DHxiwe97yBBSVTqWHn2nv-0B3Dvr6c6bJG2Hlae8qV8n0AxiH8ospVS_MmTffdDTBgTLRPW6soA2yUX3veTnDhXO9YkHlaOqa2S-mifi7dXIQRLaZ6/s320/100_4438.jpg" width="240" /></a></div> LOVE THIS PIC: My dad sleeping in his chair and Garrett yawning in his.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjbZVSbjZ_LnlBJI0lZusY4qhMmP0_tOdMu9m7TB_iUQD3wPy_qLvO2tGi2l9hN51B8IcqIr6fFwlBjn-8pneDSsJoy3AWM9X7A-xWGGeXiaGvodCvcspPOUKek_cvuta_5E-VgqsfAJ9H7/s1600/100_4432.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjbZVSbjZ_LnlBJI0lZusY4qhMmP0_tOdMu9m7TB_iUQD3wPy_qLvO2tGi2l9hN51B8IcqIr6fFwlBjn-8pneDSsJoy3AWM9X7A-xWGGeXiaGvodCvcspPOUKek_cvuta_5E-VgqsfAJ9H7/s320/100_4432.jpg" width="320" /></a></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com3tag:blogger.com,1999:blog-7212722051596434741.post-91639429927695516512011-06-17T08:01:00.000-07:002011-06-17T12:47:13.751-07:00Continuing to Thrive<div class="separator" style="clear: both; text-align: center;">Weight at last week's home health visit = 9 lbs 4 oz</div><div class="separator" style="clear: both; text-align: center;">Weight at today's home health visit = 9lbs 15oz -- almost 10 lbs. </div><div class="separator" style="clear: both; text-align: center;">Holy Mackrel!!!</div><div class="separator" style="clear: both; text-align: center;"><br />
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</div><div class="separator" style="clear: both; text-align: center;">Making a funny face in the bath -- he loves the bath.</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3UZs_haRJUqLUB2US3ITMZuyALcHVSA3LJjMUDcoe_bn0IoNpkWGKq83_5qZXlXyzOi63sHy640ns_Sz7R7f6Y9p9xaHal4DXGAlrAj-uG0JV6FHkBTXbFF3w1EpJlpNcQUFDRIWD4a3Q/s1600/100_4402.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3UZs_haRJUqLUB2US3ITMZuyALcHVSA3LJjMUDcoe_bn0IoNpkWGKq83_5qZXlXyzOi63sHy640ns_Sz7R7f6Y9p9xaHal4DXGAlrAj-uG0JV6FHkBTXbFF3w1EpJlpNcQUFDRIWD4a3Q/s320/100_4402.jpg" width="320" /></a></div> Super content in his chair:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAiYW2_4YRbSOuOdqAYPphD4NVcUANfqr0lJtbx4io99oAEqfxIqYq1PeSJBz5rUw0bRuRD759k2AVk0UKIqOcAQLrY5Hbx01bWFITjr8112XxYRuGHyt4JAr0dCRliRlRda5Yul5MmAw3/s1600/100_4408.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAiYW2_4YRbSOuOdqAYPphD4NVcUANfqr0lJtbx4io99oAEqfxIqYq1PeSJBz5rUw0bRuRD759k2AVk0UKIqOcAQLrY5Hbx01bWFITjr8112XxYRuGHyt4JAr0dCRliRlRda5Yul5MmAw3/s320/100_4408.jpg" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHl7J-8mrBdf82ENynK3_9tVUrC9Yq8737OGxXqxApScotB1HLI3Yu4ACjjH4iKlNed_FQ96Gr-LvNbMWSG9iaGOcxVW8tXHcROLSdabXbcrJ5KA696XLlBMczPZc0RXARUEkEx3wytA1L/s1600/100_4409.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHl7J-8mrBdf82ENynK3_9tVUrC9Yq8737OGxXqxApScotB1HLI3Yu4ACjjH4iKlNed_FQ96Gr-LvNbMWSG9iaGOcxVW8tXHcROLSdabXbcrJ5KA696XLlBMczPZc0RXARUEkEx3wytA1L/s320/100_4409.jpg" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl6muTHrWENmYFSVwPchJbvyoFggJOHygEs-ne8KxoxnusWZI6HgVFTK5UUgzd50cPvNE3EAu7mT8mtJoJAu5PhUlWa8dLS88d2qLOGICQPZ3VIvUgvplYFjzBiz6oHdJhv3JrSozkKKPV/s1600/100_4410.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl6muTHrWENmYFSVwPchJbvyoFggJOHygEs-ne8KxoxnusWZI6HgVFTK5UUgzd50cPvNE3EAu7mT8mtJoJAu5PhUlWa8dLS88d2qLOGICQPZ3VIvUgvplYFjzBiz6oHdJhv3JrSozkKKPV/s320/100_4410.jpg" width="320" /></a></div> Stretchin out on the floor:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxH2eqLdDZWcmmNbLCbeKfFrKcjfz4kaL8REnhVuaCzkDLaLUNKsXM3KpQRWdocyqKGyWDZX8q2kxSB0msvQeoQ5gJlgYDE0uk_tsrXrttaOMSTlxNw8OqIyF7KGT2vaEqIKJliboP8d6D/s1600/100_4412.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxH2eqLdDZWcmmNbLCbeKfFrKcjfz4kaL8REnhVuaCzkDLaLUNKsXM3KpQRWdocyqKGyWDZX8q2kxSB0msvQeoQ5gJlgYDE0uk_tsrXrttaOMSTlxNw8OqIyF7KGT2vaEqIKJliboP8d6D/s320/100_4412.jpg" width="320" /></a></div> Remarkably he still has a very ROUND head. Shocking since he laid in a NICU for 45 days. He does have a little bald spot, small price to pay ;)<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgU71RFiaf9TyWPCvSWtc3rdZw77rBD4BDMu64SL-ihIEvJFMyVyWryFxEXSdazeXvA0VczYBLXXmuxfhDkIkDAacw175rAP2eh4rugnM_P_TwZA5UZpeeC1EpG-2_d7pDoff5lLzFkxkbI/s1600/100_4417.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgU71RFiaf9TyWPCvSWtc3rdZw77rBD4BDMu64SL-ihIEvJFMyVyWryFxEXSdazeXvA0VczYBLXXmuxfhDkIkDAacw175rAP2eh4rugnM_P_TwZA5UZpeeC1EpG-2_d7pDoff5lLzFkxkbI/s320/100_4417.jpg" width="320" /></a></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com6tag:blogger.com,1999:blog-7212722051596434741.post-28958634512064817492011-06-15T14:59:00.000-07:002011-06-15T15:04:31.361-07:00I'm Getting Sick of Making Lemonade From All the Lemons Thrown at Garrett!<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%;"></span><br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%;"><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%;">Unfortunately we have now received some scary news from our Pediatrician.<span style="mso-spacerun: yes;"> </span>It appears Garrett’s new born screen came back showing him ‘borderline’ for possibly having Galactosemia – a rare genetic condition.<span style="mso-spacerun: yes;"> </span>Very upsetting news for all of us.<span style="mso-spacerun: yes;"> </span>We are having Garrett retested and must wait a week for the results.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%;">Galactosemia is a genetic condition that affects 1/60,000 babies.<span style="mso-spacerun: yes;"> </span>Typical.<span style="mso-spacerun: yes;"> </span>We suck with odds at our house these days.<span style="mso-spacerun: yes;"> </span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%;">The good news – Garrett had a small blood transfusion after his surgery.<span style="mso-spacerun: yes;"> </span>The blood transfusion could have actually thrown off his newborn screening results, which apparently can happen after a baby has had a transfusion.<span style="mso-spacerun: yes;"> </span>Thus him showing up ‘borderline’.<span style="mso-spacerun: yes;"> </span>This next test will determine if he does or does not have the condition.<span style="mso-spacerun: yes;"> </span>We are hoping he does not have it OBVIOUSLY.<span style="mso-spacerun: yes;"> </span>And just hoping the screen was thrown off due to the blood transfusion.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%;">The bad news – if he does have it, it is not a very good thing.<span style="mso-spacerun: yes;"> </span>Here is some info about it:</span></div><i style="mso-bidi-font-style: normal;"><span lang="EN" style="mso-ansi-language: EN;"><span style="color: #999999;">In individuals with galactosemia, the enzymes needed for further metabolism of galactose are severely diminished or missing entirely, leading to toxic levels of galactose……., resulting in </span><a href="http://en.wikipedia.org/wiki/Hepatomegaly" title="Hepatomegaly"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">hepatomegaly</span></span></a><span style="color: #999999;"> (an enlarged </span><a href="http://en.wikipedia.org/wiki/Liver" title="Liver"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">liver</span></span></a><span style="color: #999999;">), </span><a href="http://en.wikipedia.org/wiki/Cirrhosis" title="Cirrhosis"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">cirrhosis</span></span></a><span style="color: #999999;">, </span><a href="http://en.wikipedia.org/wiki/Renal_failure" title="Renal failure"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">renal failure</span></span></a><span style="color: #999999;">, </span><a href="http://en.wikipedia.org/wiki/Cataract" title="Cataract"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">cataracts</span></span></a><span style="color: #999999;">, </span><a href="http://en.wikipedia.org/wiki/Brain_damage" title="Brain damage"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">brain damage</span></span></a><span style="color: #999999;">, and ovarian failure. Without treatment, mortality in infants with galactosemia is about 75%.</span></span></i><br />
<br />
<i style="mso-bidi-font-style: normal;"><span lang="EN" style="mso-ansi-language: EN;"><span style="color: #999999;">The only treatment for classic galactosemia is eliminating lactose and galactose from the diet. Even with an early diagnosis and a restricted diet, however, some individuals with galactosemia experience long-term complications such as speech difficulties, learning disabilities, neurological impairment (e.g. tremors, etc)</span></span></i><br />
<br />
<i style="mso-bidi-font-style: normal;"><span lang="EN" style="mso-ansi-language: EN;"><span style="color: #999999;">Galactosemia is sometimes confused with </span><a href="http://en.wikipedia.org/wiki/Lactose_intolerance" title="Lactose intolerance"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">lactose intolerance</span></span></a><span style="color: #999999;">, but galactosemia is a more serious condition. Lactose intolerant individuals have an acquired or inherited shortage of the enzyme </span><a href="http://en.wikipedia.org/wiki/Lactase" title="Lactase"><span style="color: windowtext; text-decoration: none; text-underline: none;"><span style="color: #999999;">lactase</span></span></a><span style="color: #999999;">, and experience abdominal pains after ingesting dairy products, but no long-term effects. In contrast, a galactosemic individual who consumes galactose can cause permanent damage to their bodies.</span></span></i><br />
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt; tab-stops: 172.5pt;"><span lang="EN" style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN; mso-fareast-font-family: "Times New Roman";">As if the CDH battle wasn’t enough, now we may be dealing with this.<span style="mso-spacerun: yes;"> </span>I am hoping and praying that our next screen shows that he does NOT have Galactosemia.<span style="mso-spacerun: yes;"> </span>If he does, we will just have to deal with it.<span style="mso-spacerun: yes;"> </span>Once again, what choice do we have?</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt; tab-stops: 172.5pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt; tab-stops: 172.5pt;"><span lang="EN" style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN; mso-fareast-font-family: "Times New Roman";">I feel like I may have tapped out our prayer supply chain………however we still desperately need them.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt; tab-stops: 172.5pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt; tab-stops: 172.5pt;"><span lang="EN" style="font-family: "Times New Roman", "serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN; mso-fareast-font-family: "Times New Roman";">~Janna</span></div></span></div></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com9tag:blogger.com,1999:blog-7212722051596434741.post-73181205471021110582011-06-10T15:31:00.000-07:002011-06-10T15:31:33.510-07:00Trying to get a smile out of Garrett while trying to take the picture yourself = Blurry Pictures. <div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaPP7t_BTbzLqjhIrx9ghGQKi53jCaHrMmqRc0yeeFIhdyW9fjMH41DCyz4BvIiYogMeCeXvkCKi8tW4V_pKN7W_AKKa1YT4BWE9nGO5YXpnCfmL-DvOZWnkB1WsAyzS5yPH7RiKSKyMW8/s1600/100_4385.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaPP7t_BTbzLqjhIrx9ghGQKi53jCaHrMmqRc0yeeFIhdyW9fjMH41DCyz4BvIiYogMeCeXvkCKi8tW4V_pKN7W_AKKa1YT4BWE9nGO5YXpnCfmL-DvOZWnkB1WsAyzS5yPH7RiKSKyMW8/s320/100_4385.jpg" t8="true" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKEU0RLkvdlXFvaQq0eVXMNjfdsVluF_b981-S61eVF3nqRPrkYvZvLrEdG0i8xYzoCB3py-sI9HdF_S3ZUtBNke7WWUX-QnhaTM0YD9Pl9Us6Miu7FEXkJNmiVQWSn8ozsTcRhJyt2Fog/s1600/100_4360.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKEU0RLkvdlXFvaQq0eVXMNjfdsVluF_b981-S61eVF3nqRPrkYvZvLrEdG0i8xYzoCB3py-sI9HdF_S3ZUtBNke7WWUX-QnhaTM0YD9Pl9Us6Miu7FEXkJNmiVQWSn8ozsTcRhJyt2Fog/s320/100_4360.jpg" t8="true" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiurGOadZCogz_bEzZtcbIe1Kf2IGt7DwzbwqGNqaiply4DQEaZgSPC5pb6WP_ht3q1WZ02AQhOIIoCSBNGoaMhRAVv4eK2ckKK5czkbjKzzAIGjIGmN_j0KoeURAdWY9LFYzaU42q0UgKo/s1600/100_4379.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiurGOadZCogz_bEzZtcbIe1Kf2IGt7DwzbwqGNqaiply4DQEaZgSPC5pb6WP_ht3q1WZ02AQhOIIoCSBNGoaMhRAVv4eK2ckKK5czkbjKzzAIGjIGmN_j0KoeURAdWY9LFYzaU42q0UgKo/s320/100_4379.jpg" t8="true" width="240" /></a></div><div style="text-align: center;"> Garrett trying to figure out what is going on with me (as I am trying to get a smile!)</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7zEnejdCuflNiy5byYpElNIdvVm0IGNxiVhyphenhyphengmnYR9XaK60ZDO_iCJvGaIhMdBtgpn0YLIiymEJ1TPV6-20vKscjDxFsZO3HA17xLDxtenj6_IYj6Y5lLzNlhBinn5gr4Sn6vLUR_uXNa/s1600/100_4378.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7zEnejdCuflNiy5byYpElNIdvVm0IGNxiVhyphenhyphengmnYR9XaK60ZDO_iCJvGaIhMdBtgpn0YLIiymEJ1TPV6-20vKscjDxFsZO3HA17xLDxtenj6_IYj6Y5lLzNlhBinn5gr4Sn6vLUR_uXNa/s320/100_4378.jpg" t8="true" width="240" /></a></div> Hayley and Courtney meet Garrett:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjosEEOQUkDTaswWxOvisNNP_nmf7ptx69Lr-Y7yDtZTh15QHQzihpAfGv0jS46CP-vVZ9QlD2FlULBHsnbLZxd-DswRY5n9z7bBRcXFXrm7SYoebdlAX1f4IXXJj4u6yH16r7v-fHPsAfd/s1600/100_4350.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjosEEOQUkDTaswWxOvisNNP_nmf7ptx69Lr-Y7yDtZTh15QHQzihpAfGv0jS46CP-vVZ9QlD2FlULBHsnbLZxd-DswRY5n9z7bBRcXFXrm7SYoebdlAX1f4IXXJj4u6yH16r7v-fHPsAfd/s320/100_4350.jpg" t8="true" width="320" /></a></div> Grant saying "cheese!" for the camera:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJQtzoqtzCos1Hiy4chVfGXysxWXa7fpCdh3iWKBkZeOgwxgZqEoZLdDN6CLxF4APkPvE0VeCj1tTuDDDUxHqRm3AqBtpwAplySYc6ycGfA4EbDDIvZW7JDuniqKE1JmmRosEscfHnoxq5/s1600/100_4347.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJQtzoqtzCos1Hiy4chVfGXysxWXa7fpCdh3iWKBkZeOgwxgZqEoZLdDN6CLxF4APkPvE0VeCj1tTuDDDUxHqRm3AqBtpwAplySYc6ycGfA4EbDDIvZW7JDuniqKE1JmmRosEscfHnoxq5/s320/100_4347.jpg" t8="true" width="320" /></a></div><div style="text-align: center;"></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com2tag:blogger.com,1999:blog-7212722051596434741.post-27199873627724097342011-06-09T20:41:00.000-07:002011-06-09T20:41:17.143-07:00Almost Forgot!I need to add 2 things to that last post:<br />
<br />
First of all Garrett started babbling today. He looks like he is trying so hard to talk. AND secondly, how could I forget this, GARRETT SMILED AT ME......... 3 times in a row! I thought it was a fluke, but NOPE! I was talking to him and he smiled and then did it 2 more times as I was talking to him. Crazy! He just loves being home with his mama apparently!Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com1tag:blogger.com,1999:blog-7212722051596434741.post-19794328864011442782011-06-09T20:06:00.000-07:002011-06-09T20:06:29.818-07:00This Little Piggy is Gaining Some Weight!<div style="text-indent: 0.5in;">Well, Garrett continues to gain weight. Yesterday he was at 9 lbs. 4 oz. and today he was 9 lbs 7.5 oz. at his doctor’s appointment.<span style="mso-spacerun: yes;"> </span>I wonder how long they will keep him on high calorie formula since he is gaining so good?!<span style="mso-spacerun: yes;"> </span>I guess I should have asked that today at his doctor’s appointment.<span style="mso-spacerun: yes;"> </span>Oh well, we are back in 2 weeks to the regular pediatrician so I will keep him on high calorie until then or unless someone tells me otherwise!<span style="mso-spacerun: yes;"> </span></div><div style="text-indent: 0.5in;">A special thank you to Hayley Kohn and Courtney Atwood for their Garrett Gifts, the Honey Baked Ham, and great company.<span style="mso-spacerun: yes;"> </span>I am so glad you had the opportunity meet Garrett.<span style="mso-spacerun: yes;"> </span>It was GREAT getting to see you girls!<span style="mso-spacerun: yes;"> </span>I miss hanging out and having ‘girly time’.</div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com1tag:blogger.com,1999:blog-7212722051596434741.post-82662193997756421912011-06-08T09:41:00.001-07:002011-06-08T09:41:55.423-07:00First Home Health Visit<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;"> Garrett’s first home health visit went very well.<span style="mso-spacerun: yes;"> </span>Thank Goodness!<span style="mso-spacerun: yes;"> </span>I have been sweatin it – mainly about his weight and blood pressure.<span style="mso-spacerun: yes;"> </span>If he did not gain weight that is NOT GOOD and I really do NOT NOT NOT want to be readmitted to a NICU anytime in the immediate future.<span style="mso-spacerun: yes;"> </span>Let’s just say it wasn’t a problem.<span style="mso-spacerun: yes;"> </span>When we left the hospital on Saturday he weighed 8 lbs. 12 oz. – today at his home health weigh in he weighed 9 lbs. 4 oz.<span style="mso-spacerun: yes;"> </span>I think he definitely didn’t lose weight </span><span style="font-family: Wingdings; mso-ascii-font-family: Calibri; mso-ascii-theme-font: minor-latin; mso-char-type: symbol; mso-hansi-font-family: Calibri; mso-hansi-theme-font: minor-latin; mso-symbol-font-family: Wingdings;"><span style="mso-char-type: symbol; mso-symbol-font-family: Wingdings;">J</span></span><span style="font-family: Calibri;">.<span style="mso-spacerun: yes;"> </span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;"><span style="mso-tab-count: 1;"> </span>His blood pressure was also GREAT.<span style="mso-spacerun: yes;"> </span>Very in the normal range.<span style="mso-spacerun: yes;"> </span>It has a tendency, as with most CDH babies, to be too high.<span style="mso-spacerun: yes;"> </span>But it was good today!<span style="mso-spacerun: yes;"> </span>His heart sounded good as well.<span style="mso-spacerun: yes;"> </span>I told the home health nurse she can come by anytime she wants if she is always going to give me such good news!</span></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com4tag:blogger.com,1999:blog-7212722051596434741.post-28690846094866459552011-06-07T17:33:00.000-07:002011-06-07T17:33:30.928-07:00Settling In<div class="MsoNormal" style="margin: 0in 0in 10pt; text-indent: 0.5in;"><span style="font-family: Calibri;">Garrett has settled right in at home.<span style="mso-spacerun: yes;"> </span>It is SHOCKING to me what a CONTENT baby he is.<span style="mso-spacerun: yes;"> </span>I just expected a cranky, hard to please baby due to the fact he had been through so much.<span style="mso-spacerun: yes;"> </span>WRONG.<span style="mso-spacerun: yes;"> </span>He is quite the opposite.<span style="mso-spacerun: yes;"> </span>The only time I see him get very upset is when I lay him on the changing table to change his diaper.<span style="mso-spacerun: yes;"> </span>At the hospital diaper changes went along with his assessments – which could include a LONG list of items with everything from blood pressure checks to blood draws.<span style="mso-spacerun: yes;"> </span>So he has BAD associations with having his diaper changed.<span style="mso-spacerun: yes;"> </span>The moment I get the diaper changed and pick him up he is SILENT.<span style="mso-spacerun: yes;"> </span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt; text-indent: 0.5in;"><span style="font-family: Calibri;">We have had a few spit ups with one BIG one the first day we were home, other than that he has been quite the easy baby.<span style="mso-spacerun: yes;"> </span>The spitting up is normal for CDH babies.<span style="mso-spacerun: yes;"> </span>We just try to keep him upright for at least 10 to 15 minutes after each feeding and that really seems to help.<span style="mso-spacerun: yes;"> </span>The majority of feedings we do not have any problems.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt; text-indent: 0.5in;"><span style="font-family: Calibri;">Adjusting to a baby that requires a little more attention and a 3-year-old that is all excited to have a baby brother home is NUTS!<span style="mso-spacerun: yes;"> </span>However I am enjoying every exhausting minute of it – wouldn’t change it for the world.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt; text-indent: 0.5in;"><span style="font-family: Calibri;">We have Garrett's first normal pediatric appointment tomorrow -- hoping for a weight gain! We also have home health nurses coming to the house over the next month to monitor his blood pressure, weight, etc. Gives me a little extra peace of mind, I'm LOVING that. ;)</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt; text-indent: 0.5in;"><span style="font-family: Calibri;">Special thanks to DJ, Ashley, & Peyton Mernick for the food – good stuff!<span style="mso-spacerun: yes;"> </span>Also want to thank my Chicago Family for the Lou Malnati’s Pizza’s that were delivered from Chicago today.<span style="mso-spacerun: yes;"> </span>YIPEE to that!</span></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;">Lovin from Mimi Vicky</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3rLJ2-R3IC6olo4wC2C1ovagB_byEGpuPrBf-H3y3ggV1JHRTfE_Y6aMSHyFodb12RxyMlb383ZdsNjZgixYnInQ4CSYDLrZGwaRk68naZ5kRtfZr_Er0yDXZ3a9CZZDm5UVYwTyoFKmn/s1600/100_4308.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3rLJ2-R3IC6olo4wC2C1ovagB_byEGpuPrBf-H3y3ggV1JHRTfE_Y6aMSHyFodb12RxyMlb383ZdsNjZgixYnInQ4CSYDLrZGwaRk68naZ5kRtfZr_Er0yDXZ3a9CZZDm5UVYwTyoFKmn/s320/100_4308.jpg" t8="true" width="320" /></a></div> Lovin from Mimi Ellen<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhceOVhC047EXk5E_cDlN_FPEx2fE21Zy_0VebKYJj0-kNtXdSNrG3Ql0plxs2LFovwBfxZAwlW5VGxhjC_JwtftROv1RNl-it_TkiK4YWq0vsW8SQ4E21zgySUjmDSviUQsAAKeB_MvUbL/s1600/100_4313.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhceOVhC047EXk5E_cDlN_FPEx2fE21Zy_0VebKYJj0-kNtXdSNrG3Ql0plxs2LFovwBfxZAwlW5VGxhjC_JwtftROv1RNl-it_TkiK4YWq0vsW8SQ4E21zgySUjmDSviUQsAAKeB_MvUbL/s320/100_4313.jpg" t8="true" width="320" /></a></div> Lovin from Papa Ed<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQYKNGBZR-i71JN3zhbtkI9o4YJ2Y8Rbw6uIbN0iowVa5wiTJzK1Nxgbp-OpZZgvNe_eYHIIME_wqSO-SxkEBd3Fy1qbQ0pnoZWuCLcBJ4RLcDGCtyOdLbP3EYfbx_VbSv0SPA0Ic8-itU/s1600/100_4318.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQYKNGBZR-i71JN3zhbtkI9o4YJ2Y8Rbw6uIbN0iowVa5wiTJzK1Nxgbp-OpZZgvNe_eYHIIME_wqSO-SxkEBd3Fy1qbQ0pnoZWuCLcBJ4RLcDGCtyOdLbP3EYfbx_VbSv0SPA0Ic8-itU/s320/100_4318.jpg" t8="true" width="240" /></a></div> Check out those bird legs!<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQoKk-z9psl-UEgN6xF4dldPDsVSrMMCdPx4wzqhdt6b7AiYGffWEKn3niZPr_mfAkLx0mFfDzu58MC4goDs3vV2Bq8ydIYUogUiOF5dsANK7fukDbs74vBxISAuNctVNsf18WVdDVfy6u/s1600/100_4325.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQoKk-z9psl-UEgN6xF4dldPDsVSrMMCdPx4wzqhdt6b7AiYGffWEKn3niZPr_mfAkLx0mFfDzu58MC4goDs3vV2Bq8ydIYUogUiOF5dsANK7fukDbs74vBxISAuNctVNsf18WVdDVfy6u/s320/100_4325.jpg" t8="true" width="320" /></a></div> Lovin from brother Grant<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOR7gm2k6zRBNUwVUYmD7-GZRplFmbWD30iRmOuv2E2tVkyhkMm5-lC8bwTbklzP2lOs3MD072RhyqTDgQh8bXAEuE4k8f0HW9e4KU1ppaI2tVcnPru90hEq-jAu3UJX1ZtmzEIhBnoEZK/s1600/100_4343.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOR7gm2k6zRBNUwVUYmD7-GZRplFmbWD30iRmOuv2E2tVkyhkMm5-lC8bwTbklzP2lOs3MD072RhyqTDgQh8bXAEuE4k8f0HW9e4KU1ppaI2tVcnPru90hEq-jAu3UJX1ZtmzEIhBnoEZK/s320/100_4343.jpg" t8="true" width="320" /></a></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com4tag:blogger.com,1999:blog-7212722051596434741.post-46257143651981697432011-06-04T19:37:00.000-07:002011-06-04T19:37:16.418-07:00Garrett Comes Home<div class="separator" style="clear: both; text-align: center;">"I heard a rumor I may get busted out of this joint today!"</div><div class="separator" style="clear: both; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGfGD455t7U_9GScJ7yeEZtqUHVzL_BJ5Zhmfu_rejJ_spmX8jzWs3Iwqrx-Vjcj5CwovtLPTNfezqYfmMERkoKKtAj536Ed_7Aq4bpu38LjOR8KyjzMVPtk8L8rAxD0GsEC4BG7wpyUc2/s320/100_4270.jpg" t8="true" width="240" /></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">Last snooze in the NICU crib:</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLWRj3XaP4u7c8xNFYBtkrzCiBjI0BZJqbf0PZKApSrj25gvIDXA67M3m1TUBZM0WtLmESYFmepTAmkNwiYlOsYppQ9Ufx6YK0wwyqmNPQ5lPYVuuEdzxj0faLO_LG_-3DvSCBgxTODeJ0/s1600/100_4272.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLWRj3XaP4u7c8xNFYBtkrzCiBjI0BZJqbf0PZKApSrj25gvIDXA67M3m1TUBZM0WtLmESYFmepTAmkNwiYlOsYppQ9Ufx6YK0wwyqmNPQ5lPYVuuEdzxj0faLO_LG_-3DvSCBgxTODeJ0/s320/100_4272.jpg" t8="true" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjlkS_t89onU5zh67w36XlVICEPBR4rldQXQAUxOeuPRTl85VtzLXTfxWA3DZio5Bb2eu8p3d49bJEtQb3mYImLNTFLzeMoay_fDg_BBnXY43h9ypgk9Efhe7Nl0Dn4bxVwd2Iz1UteZIe/s1600/100_4280.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjlkS_t89onU5zh67w36XlVICEPBR4rldQXQAUxOeuPRTl85VtzLXTfxWA3DZio5Bb2eu8p3d49bJEtQb3mYImLNTFLzeMoay_fDg_BBnXY43h9ypgk9Efhe7Nl0Dn4bxVwd2Iz1UteZIe/s320/100_4280.jpg" t8="true" width="320" /></a></div> Grant thinking he is funny........it was kinda funny.......<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhp5t4qUBj0JgC2qpC8jf6MXuv8QrpDBZaQSVKcdzq5Ml6j3ZiGXfxpOiNGR1QYq8BYPtpR2MoWV1dDKxzDtHM5ignoA1gL9IHeZXWnvwjOuO0WKvWeRDcV1vl_Ce8cjio8OHgwDGwGb9Qz/s1600/100_4284.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhp5t4qUBj0JgC2qpC8jf6MXuv8QrpDBZaQSVKcdzq5Ml6j3ZiGXfxpOiNGR1QYq8BYPtpR2MoWV1dDKxzDtHM5ignoA1gL9IHeZXWnvwjOuO0WKvWeRDcV1vl_Ce8cjio8OHgwDGwGb9Qz/s320/100_4284.jpg" t8="true" width="320" /></a></div> Garrett's largest scar from his repair surgery:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGuB0QPAnMLFoH7PCnIXqlvYOv6o_mr0O5HPS9cEzQuZK8rS72fvNSoqN8mBtCz5qryywcnsMhmcNeGQNCmQwTX9ZTHM_URVFa4QjGj0e8dO9yNMDMoRQC4jA3PhouK_gaGsWOfvl8dF5B/s1600/100_4287.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGuB0QPAnMLFoH7PCnIXqlvYOv6o_mr0O5HPS9cEzQuZK8rS72fvNSoqN8mBtCz5qryywcnsMhmcNeGQNCmQwTX9ZTHM_URVFa4QjGj0e8dO9yNMDMoRQC4jA3PhouK_gaGsWOfvl8dF5B/s320/100_4287.jpg" t8="true" width="240" /></a></div> Waiting to be discharged:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAE3hWTh2c7Rrw8O1CMPX5oBHc6ZeWXRL2kRZfwyvm_Wall4K1yEnsXXwTv6suuOLhPqYaRDcUMosZV6b0KLBr-Y2tIK9JaUFlQAd-ijycTzgy4Md973CR9zUHiapsK_jN6f8g7JmeUVHK/s1600/100_4288.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAE3hWTh2c7Rrw8O1CMPX5oBHc6ZeWXRL2kRZfwyvm_Wall4K1yEnsXXwTv6suuOLhPqYaRDcUMosZV6b0KLBr-Y2tIK9JaUFlQAd-ijycTzgy4Md973CR9zUHiapsK_jN6f8g7JmeUVHK/s320/100_4288.jpg" t8="true" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhw1j4rReeydsW-T9pHnp0wcuGAA35WGUAJD3O9f6YMHm4-EBN44cIt4Kqs9YbujLzSaDKl_SPEbA2LSWGA2GsqwoShobRlHFha5c8YrJpeBwBa-3ugCFWA76mb4QlVBhX47FQSB3Cm3Y7_/s1600/100_4293.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhw1j4rReeydsW-T9pHnp0wcuGAA35WGUAJD3O9f6YMHm4-EBN44cIt4Kqs9YbujLzSaDKl_SPEbA2LSWGA2GsqwoShobRlHFha5c8YrJpeBwBa-3ugCFWA76mb4QlVBhX47FQSB3Cm3Y7_/s320/100_4293.jpg" t8="true" width="320" /></a></div> Headin out:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2gdWsDxAVVimAtH4xkLxhfcPsV51Xu_R0hcsRTQ92JsWs6V_IqOOwijfZh4_eDq9XxXPZ8_VuqPySCTumQpfkWM7AS70gJU-iypQF_KSjVysLsG2vhwkFFGb0PNtBSEihE1ou2XGv00aL/s1600/100_4294.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2gdWsDxAVVimAtH4xkLxhfcPsV51Xu_R0hcsRTQ92JsWs6V_IqOOwijfZh4_eDq9XxXPZ8_VuqPySCTumQpfkWM7AS70gJU-iypQF_KSjVysLsG2vhwkFFGb0PNtBSEihE1ou2XGv00aL/s320/100_4294.jpg" t8="true" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7rojBbAwxCCBpYDgfZXZV1CpPsp-crN9qq7l0fpCufCAAY8d0exismKAHEb1ukk1oRCdIkpNjuW9JTDEaKMXqYzzuGY3MLWp2zH6wsl-XEw075ebGIpBC1f8LX1CVdXBV-1hM32loXmzk/s1600/100_4296.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7rojBbAwxCCBpYDgfZXZV1CpPsp-crN9qq7l0fpCufCAAY8d0exismKAHEb1ukk1oRCdIkpNjuW9JTDEaKMXqYzzuGY3MLWp2zH6wsl-XEw075ebGIpBC1f8LX1CVdXBV-1hM32loXmzk/s320/100_4296.jpg" t8="true" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMBMf-lDTdtwTQUMuK1P2z9m7swSRXTM5VE0hCWuZUqDkc3aVrQ2nB6D7KAtKL2KryUtgA4oxI491KMBqNQDDJ6SuJlwmjrwaFtHzo_S5EkhX001BI1JS8SccHSo7PhUBZZ1veFYwZLRXM/s1600/100_4297.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMBMf-lDTdtwTQUMuK1P2z9m7swSRXTM5VE0hCWuZUqDkc3aVrQ2nB6D7KAtKL2KryUtgA4oxI491KMBqNQDDJ6SuJlwmjrwaFtHzo_S5EkhX001BI1JS8SccHSo7PhUBZZ1veFYwZLRXM/s320/100_4297.jpg" t8="true" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-xP77TtQES-QhEO_TaIHHetnuZZHwKLjw3-dgTTFLjTUbZFJTUlrW06gGzbBNWGDrVnfRN6G3sbk3xHyntVowsxCmWXuxPFpUKUxbKqLqER7E5zQQmXzrhKC7vc_o_sxYn6W0ls2SmevE/s1600/100_4298.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-xP77TtQES-QhEO_TaIHHetnuZZHwKLjw3-dgTTFLjTUbZFJTUlrW06gGzbBNWGDrVnfRN6G3sbk3xHyntVowsxCmWXuxPFpUKUxbKqLqER7E5zQQmXzrhKC7vc_o_sxYn6W0ls2SmevE/s320/100_4298.jpg" t8="true" width="240" /></a></div> Welcome home baby boy:<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNKOPKTRggK0s1z5Jc-ttTSwRtyHz4dHC_GQgR5yvfFknxvtqkG1D2BdMRegiinIoXHP6DAxAZWrTJ00y7BhVqTLoqRnGS9HiRIhtV_KaPjAqNc4lJwk_cvAmigHcDjyb1XGzzBBM-B7E9/s1600/100_4300.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNKOPKTRggK0s1z5Jc-ttTSwRtyHz4dHC_GQgR5yvfFknxvtqkG1D2BdMRegiinIoXHP6DAxAZWrTJ00y7BhVqTLoqRnGS9HiRIhtV_KaPjAqNc4lJwk_cvAmigHcDjyb1XGzzBBM-B7E9/s320/100_4300.jpg" t8="true" width="240" /></a></div><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtp4GX-srloOcaoNnzUJZriBOsnpAOCvTEULDrfbRz8URKnxZFb3V2YyVZbNuCxBF_qrDByrmb0Z7mWvOfzMaRIc0QQi7o7K66X5PA2NMY2QCIWRlosTcIqht_JnObh9h-NQSmMEY59elp/s1600/100_4304.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtp4GX-srloOcaoNnzUJZriBOsnpAOCvTEULDrfbRz8URKnxZFb3V2YyVZbNuCxBF_qrDByrmb0Z7mWvOfzMaRIc0QQi7o7K66X5PA2NMY2QCIWRlosTcIqht_JnObh9h-NQSmMEY59elp/s320/100_4304.jpg" t8="true" width="320" /></a></div><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhGMl9hbcAe82xxbiSIrpPhE3HSESKmc1pKmBIaFLQXo-ZL1Fcu568b9g5LG_RyZ5mABTkZLN8iHcTUYSaKbc8FfbL6I3J2fGoUrDLuz8q-lKOrq3mY0oGWZfbq2CRjx3v7KNcf7KHXtlZ/s1600/100_4312.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhGMl9hbcAe82xxbiSIrpPhE3HSESKmc1pKmBIaFLQXo-ZL1Fcu568b9g5LG_RyZ5mABTkZLN8iHcTUYSaKbc8FfbL6I3J2fGoUrDLuz8q-lKOrq3mY0oGWZfbq2CRjx3v7KNcf7KHXtlZ/s320/100_4312.jpg" t8="true" width="240" /></a></div><div align="center"></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com18tag:blogger.com,1999:blog-7212722051596434741.post-42757511533221657542011-06-04T12:01:00.001-07:002011-06-04T12:01:54.898-07:00Day 45<div style="text-align: center;"><span style="font-size: x-large;">Today Garrett Goes To The Zoo. :) </span></div><div style="text-align: center;"><span style="font-size: x-large;">Such A Happy Day.</span></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com10tag:blogger.com,1999:blog-7212722051596434741.post-87152531606401225572011-06-03T22:16:00.000-07:002011-06-03T22:16:05.367-07:00You've Come a Long Way BABY.<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;">Last night Garrett’s nurse was one that also had him before his repair surgery.<span style="mso-spacerun: yes;"> </span>She told me she was his nurse during the night he almost had to go on ECMO (baby life support).<span style="mso-spacerun: yes;"> </span>I knew there had been talk of him going on ECMO.<span style="mso-spacerun: yes;"> </span>I am just glad that, first and foremost, we DID NOT NEED IT and secondly, I wasn’t around when the doctors where considering putting him on it.<span style="mso-spacerun: yes;"> </span>I probably would have just fallen apart.<span style="mso-spacerun: yes;"> </span>Once on ECMO, there is only a 50% chance that he would have been able to come back off of it.<span style="mso-spacerun: yes;"> </span>The nurse told me he took a turn back towards the ‘better’ and the doctors obviously decided he did not need to go on it after all.<span style="mso-spacerun: yes;"> </span>Talk about dodging that bullet – barely.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;">I guess the nurse telling me about how close Garrett was to going on ECMO made me really examine where he has come from THEN til NOW.<span style="mso-spacerun: yes;"> </span>He has had to fight to live from the day he was born.<span style="mso-spacerun: yes;"> </span>Garrett has to work for his life – with every breath he takes.<span style="mso-spacerun: yes;"> </span>He only has ¼ of a left lung.<span style="mso-spacerun: yes;"> </span>He has a misshaped heart.<span style="mso-spacerun: yes;"> </span>He almost needed life support before he had been on this earth for 24 hours.<span style="mso-spacerun: yes;"> </span>I look now at a sleeping miracle in his room.<span style="mso-spacerun: yes;"> </span>He now wears no oxygen.<span style="mso-spacerun: yes;"> </span>He eats from a bottle.<span style="mso-spacerun: yes;"> </span>He stares at a mobile over his crib and makes baby noises.<span style="mso-spacerun: yes;"> </span>AND, one of my favorite things is that he crys – it is so wonderful to be able to hear it.<span style="mso-spacerun: yes;"> </span></span></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com2tag:blogger.com,1999:blog-7212722051596434741.post-39802167033457706972011-06-03T15:28:00.000-07:002011-06-03T15:28:37.929-07:00Day 44: Garrett is Back to NormalGarrett seems to be back to himself today. No more cranky baby in this room. Just a wide eyed, content baby looking at his mobile. So much better. I find it interesting he is such a content baby most the time. I mean...he has every right in the world to be a cranky baby with everything that has happened to him. But he is not. Quite the opposite actually. When I stayed 2 nights ago at the hospital he woke up ONE time in the middle of the night for a bottle and right back to sleep. I woke him in the morning for his morning feeding. Right now he is grunting trying to get out of his swaddled blanket. I just love baby noises. And now it looks like he gave up and is falling back asleep.............Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com2tag:blogger.com,1999:blog-7212722051596434741.post-33789873514526140612011-06-02T21:26:00.000-07:002011-06-02T21:27:16.731-07:00Bad news.........and more bad news..........Day: 43<span style="font-family: Calibri;"><span style="mso-tab-count: 1;"></span></span><br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="mso-tab-count: 1;"> </span>Today was rough for mom and Garrett.<span style="mso-spacerun: yes;"> </span>First of all Garrett had his circumcision done last night.<span style="mso-spacerun: yes;"> </span>So he was not too happy this morning about that.<span style="mso-spacerun: yes;"> </span>Then this morning they stopped the last of his narcotic drugs.<span style="mso-spacerun: yes;"> </span>Bummer.<span style="mso-spacerun: yes;"> </span>He had pretty bad withdraws today.<span style="mso-spacerun: yes;"> </span>He just was not his normal self.<span style="mso-spacerun: yes;"> </span>Once again, I knew this was coming since we had postponed it once before.<span style="mso-spacerun: yes;"> </span>But that doesn’t necessarily make it any easier.<span style="mso-spacerun: yes;"> </span>We both cried today.<span style="mso-spacerun: yes;"> </span>He cried from the withdraws and I cried because he had withdraws.<span style="mso-spacerun: yes;"> </span>Lose/lose situation in our room today!<span style="mso-spacerun: yes;"> </span>He didn’t even really want his binky….so I KNEW he was not feeling right.</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="mso-tab-count: 1;"> </span>Other HUGE BUMMER is that Garrett lost weight over the past 2 days.<span style="mso-spacerun: yes;"> </span>That is a big no-no when you are trying to get signed up for the next boat out of the NICU.<span style="mso-spacerun: yes;"> </span>So that has obviously pushed back our trip to the ‘zoo’.<span style="mso-spacerun: yes;"> </span>He was up to around 8lbs 9oz.<span style="mso-spacerun: yes;"> </span>He dropped back down into the 8lb 8oz zone.<span style="mso-spacerun: yes;"> </span>But as of this evening he was back up –8lbs<span style="mso-spacerun: yes;"> </span>11oz, the best yet!<span style="mso-spacerun: yes;"> </span>So I am trying to figure out how I can pump the most food into the kid without him spitting it right back at me.<span style="mso-spacerun: yes;"> </span><span style="font-family: Wingdings; mso-ascii-font-family: Calibri; mso-ascii-theme-font: minor-latin; mso-char-type: symbol; mso-hansi-font-family: Calibri; mso-hansi-theme-font: minor-latin; mso-symbol-font-family: Wingdings;"><span style="mso-char-type: symbol; mso-symbol-font-family: Wingdings;">J</span></span><span style="mso-spacerun: yes;"> </span>Best bet for Garrett seems to be sticking with feeds every 3 hours.<span style="mso-spacerun: yes;"> </span>He burns more calories than a normal baby because he works so hard to breathe.<span style="mso-spacerun: yes;"> </span>So we have to pump as many calories into him as possible, while also being healthy about it.<span style="mso-spacerun: yes;"> </span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="mso-tab-count: 1;"> </span>Garrett seemed to be doing better late this evening.<span style="mso-spacerun: yes;"> </span>His weight was back up and he wanted his binky with a vengeance – both good signs.<span style="mso-spacerun: yes;"> </span>So I came home to sleep for a few hours.<span style="mso-spacerun: yes;"> </span>The past few days have been crazy stressful. No one ever said the CDH rollarcoaster would be an easy ride – but it just is SO LONG!<span style="mso-spacerun: yes;"> </span>I wanna pull into the unloading zone already!</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br />
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</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"></div><div class="separator" style="clear: both; text-align: center;"><object class="BLOGGER-picasa-video" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0" data-thumbnail-src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixKmmbVipTm24NBQzEnC4xlCPVxwgrIwz2OAtIWok6L4DSQ1LQ_PqKjFIk6pcgag4nRdGhUbBLxRRn-4MsBTQ6QmIwOKaSwZO8oyfiJmhDpBY9UGbgCB-ingKs8Dr6f69W7yHIu65b4EjO/s1600/100_4264.mov" height="266" width="320"><param name="movie" value="http://video.google.com/googleplayer.swf?videoUrl=http%3A%2F%2Fv23.nonxt2.googlevideo.com%2Fvideoplayback%3Fid%3Dfebcdca60cce351b%26itag%3D18%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1307096012%26sparams%3Did%2Citag%2Cip%2Cipbits%2Cexpire%26signature%3DC0CCA414685761A9E44C80C58857D85CA1789BAB.862538B4597AA960FC884669A2E265F986FB353B%26key%3Dlh1" /><param name="bgcolor" value="#FFFFFF" /><embed width="320" height="266" src="http://video.google.com/googleplayer.swf?videoUrl=http%3A%2F%2Fv23.nonxt2.googlevideo.com%2Fvideoplayback%3Fid%3Dfebcdca60cce351b%26itag%3D18%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1307096012%26sparams%3Did%2Citag%2Cip%2Cipbits%2Cexpire%26signature%3DC0CCA414685761A9E44C80C58857D85CA1789BAB.862538B4597AA960FC884669A2E265F986FB353B%26key%3Dlh1" type="application/x-shockwave-flash"></embed></object></div><div align="center">Loving the Binky.</div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com2tag:blogger.com,1999:blog-7212722051596434741.post-28633922511257022262011-06-01T21:40:00.000-07:002011-06-01T21:42:10.113-07:00Car Seat Test (Day 42)<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;">Garrett took his car seat test today.<span style="mso-spacerun: yes;"> </span>He had to sit in his car seat for an hour.<span style="mso-spacerun: yes;"> </span>He did just fine.<span style="mso-spacerun: yes;"> </span>He actually fell asleep and ended up staying in the car seat for closer to 2 hours.<span style="mso-spacerun: yes;"> </span>Looks like he will enjoy car rides like his brother!</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;"><span style="mso-tab-count: 1;"> </span>Today was an unbelievably crazy day in the orange hallway.<span style="mso-spacerun: yes;"> </span>I made the mistake yesterday of saying out loud that it was an exceptionally SLOW day….then today happened; just very busy. <span style="mso-spacerun: yes;"> </span>I also found out they are doing Garrett’s circumcision tonight, so I ended up deciding to stay the night as well.<span style="mso-spacerun: yes;"> </span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;"><span style="mso-tab-count: 1;"> </span>We are now a catch 22.<span style="mso-spacerun: yes;"> </span>Garrett is now in a good place health wise, so he is now a low priority baby compared to some of the others in the NICU.<span style="mso-spacerun: yes;"> </span>So if a sicker baby needs attention, Garrett has to wait his turn.<span style="mso-spacerun: yes;"> </span>Since he is doing so well, his nurse may have up to 3 babies.<span style="mso-spacerun: yes;"> </span>So now I find myself actually spending more time at the hospital to take care of him.<span style="mso-spacerun: yes;"> </span>I am very happy he is doing so well, NO DOUBT. It is just interesting when he was sicker, he had his own nurse and I was actually more comfortable leaving the NICU to go home for the evening.<span style="mso-spacerun: yes;"> </span>Now I worry he will cry and no one will be able to come to his room until they are ‘available’.<span style="mso-spacerun: yes;"> </span>Like I said – a catch 22.</span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;"><span style="mso-tab-count: 1;"> </span></span></div><div class="separator" style="clear: both; text-align: center;"><br />
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</div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com3tag:blogger.com,1999:blog-7212722051596434741.post-44545249065365102572011-05-31T20:24:00.000-07:002011-05-31T20:28:32.686-07:00By One of my Best FriendsOne of my best friends recently wrote about me on her blog. It was a very well written post so I wanted to include it on my blog. Megan is a labor and delivery nurse -- and a mighty fine one might I add!!! Love you much Megan!<br />
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<h3 class="post-title entry-title"><em>My Friend : By Megan (Ellett) Parcel</em></h3><div class="post-header"><div class="post-header-line-1"><em></em></div></div><div class="post-body entry-content" id="post-body-6683455317998634925"><em>Can I just talk a little bit about one of my best friends, Janna?<br />
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She, Andrea, and I met in the fall of 1999, and were basically inseparable until spring 2003 when Andrea and I graduated college. Janna graduated the spring before but came back for lots of weekends. Anyways, these two women are defining women in my life. They loosened me up, helped me become confident and sassy, and are basically the sisters I got to choose. I love them both dearly and would drop anything at anytime if they needed me. I am positive they would do the same. We have grown from giggling college coeds to giggling grown women when we are together. Our husbands get along. Our kids get along. Coincidentally, we all only have boys...word is still out on Andrea's latest bundle of joy, but I have a feeling she's in for boy number two also!<br />
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This fall, Janna and her husband, Paul, found out at a routine ultrasound that something was wrong with their baby. Further tests revealed that their second son has a birth defect called congenital diaphragmatic hernia (CDH). To make a long explanation short- his abdominal organs were in his chest cavity and didn't allow his heart or lungs to form or grow properly.<br />
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Now, I know what I would have done with news like this. I would have turned into a crying, weak, worrisome, unpleasant, wallowing in the sadness woman. And after learning of the less than favorable odds that he was given- I would have shut down. My heart was breaking for my friend and her family.<br />
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Not Janna. She met this head on, did countless hours of research on CDH, doctors, hospitals, treatment options, facilities. She became totally engrossed and invested in this baby. She started throwing around medical terms like a pro. She started a blog (</em><a href="http://www.ourcdhstory.blogspot.com/"><em>www.ourcdhstory.blogspot.com</em></a><em>) for all her friends and family to read. The last time I checked, that blog had over 20,000 visits.<br />
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She was determined to change the odds for her baby. <br />
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I know Janna. There is no one more head strong than her. (I know, I've lived with her!) If she wants something to happen, she makes it happen. She excels at everything she does. She is strong and smart and always prepared.<br />
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Through this whole thing, she has been positive and thankful. I am sure she has had bad days or moments, but she has kept it in order. And that's something I am in awe of.<br />
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After Garrett was born, she has been with him every day. She knows him like the back of her hand. She has been his biggest supporter and advocate. She hasn't been afraid to tell the doctors and nurses what she thinks is best for her baby. She knows that no one knows him like she does, and she does what he needs her to do for him.<br />
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I had the privilege of visiting them last week. Let me just say, the pictures do not do the poor kid justice. In the pictures, yes, he is adorable. In person, he is beautiful. Big, dark, handsome eyes...my oh my. Heartbreaker.<br />
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Now, I see babies every day. But when I saw him, I teared up. He is a fighter, stubborn, and headstrong. He knows what he wants and how to get it. He's got his momma in him. And watching them look at each other will forever be locked in my memories.<br />
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The odds for a CDH baby truthfully aren't very good. Definitely not in your favor. Garrett has been a lil man on a mission. He was able to stay off ECMO (baby life support), he did great after his surgery, was able to be extubated, and most recently, has mastered the art of eating. (He will now fit in with all of us and our boys!) This little baby is nothing short of a miracle.<br />
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I am so thankful to God for Garrett's recovery. I can't wait to see what life has in store for him. He has a purpose, that is for sure! I am excited to see him grow up.<br />
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I am sure though, no where near as excited as his mother and my friend Janna. </em></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com2tag:blogger.com,1999:blog-7212722051596434741.post-52967859954475490482011-05-31T18:27:00.000-07:002011-05-31T18:27:56.095-07:00Cannula Free: Day 41<div align="center" class="separator" style="margin: 0in 0in 0pt; text-align: center;">Garrett came off his oxygen today. He still breathes fast.<span style="mso-spacerun: yes;"> </span>It is weird to be able to see his face.<span style="mso-spacerun: yes;"> </span>VERY WEIRD.<span style="mso-spacerun: yes;"> </span></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhv5UTl-WpuYS07-qfLdX8h6gPyxtuBzDtlRyq2nDSew6c0arvubCWmhzFiOBCrj6_WMACdP2AxAfpMHUrdGN8MVg_o1R6ce4GaqOWUpmHD-d9Av4BsMLIQP_nqss4uR-GUloC22FN7tAwC/s1600/100_4256.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhv5UTl-WpuYS07-qfLdX8h6gPyxtuBzDtlRyq2nDSew6c0arvubCWmhzFiOBCrj6_WMACdP2AxAfpMHUrdGN8MVg_o1R6ce4GaqOWUpmHD-d9Av4BsMLIQP_nqss4uR-GUloC22FN7tAwC/s320/100_4256.jpg" t8="true" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhg_Sy2H1xU8NiargnuI4zDPm_P90i6KTrRVRkV4RQACMZyI3r2xCKAiaql_lJlWu4YyEYNkhJVhVJx-N60P93yoEj-Q0AaSK0De-R-A8d83Y1YLX_yxFinJEZluH891DridrEiFxwLRHyF/s1600/100_4254.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhg_Sy2H1xU8NiargnuI4zDPm_P90i6KTrRVRkV4RQACMZyI3r2xCKAiaql_lJlWu4YyEYNkhJVhVJx-N60P93yoEj-Q0AaSK0De-R-A8d83Y1YLX_yxFinJEZluH891DridrEiFxwLRHyF/s320/100_4254.jpg" t8="true" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFegQ18_Bi1qGbmnzPvwYsXH4YOEeILq4IDmeRy25vEm0gnRo40ZyEvkswzBVhr6tK8b2RnlGbN4uoHxI177HYGDD4pxd8PNAoLgqSC2b9AVFNAlqE5IIadl1gwbxes79b9SmX_89ixefy/s1600/100_4248.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFegQ18_Bi1qGbmnzPvwYsXH4YOEeILq4IDmeRy25vEm0gnRo40ZyEvkswzBVhr6tK8b2RnlGbN4uoHxI177HYGDD4pxd8PNAoLgqSC2b9AVFNAlqE5IIadl1gwbxes79b9SmX_89ixefy/s320/100_4248.jpg" t8="true" width="240" /></a></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com8tag:blogger.com,1999:blog-7212722051596434741.post-35939959564065514122011-05-30T18:57:00.000-07:002011-05-30T18:58:31.603-07:00Frantic for the Bottle<div style="text-indent: 0.5in;">Garrett gets "frantic" for his bottle. It is so funny. "Frantic" is the word the nurses use to describe it. He just flails those little arms and then – suck, suck, suck, suck as fast as possible once he gets his hands on it.<span style="mso-spacerun: yes;"> </span>Too funny.<span style="mso-spacerun: yes;"> </span>Today they decided to change his feedings to allow him to eat as much as he wants at each feeding.<span style="mso-spacerun: yes;"> </span>So they filled his bottle up with 90 mls……….and he ate all of it…………hahhahaha.<span style="mso-spacerun: yes;"> </span>I did 2 feedings today and he ate the entire 90 mls at both feedings.<span style="mso-spacerun: yes;"> </span>Quite the little porker.<span style="mso-spacerun: yes;"> </span></div><div style="text-indent: 0.5in;">He is still keeping all his feedings down.<span style="mso-spacerun: yes;"> </span>It is almost like his stomach just ‘figured it out’.<span style="mso-spacerun: yes;"> </span>He acts so much like a normal baby now I am somewhat shocked.<span style="mso-spacerun: yes;"> </span>For so long he was sedated and if he did get upset, they would just give him stronger drugs.<span style="mso-spacerun: yes;"> </span>Not so much anymore.<span style="mso-spacerun: yes;"> </span>Now the binky is his main soothing item instead of upping the morphine or getting a dose of versed ordered.<span style="mso-spacerun: yes;"> </span>AAAAHHHHH, to be a little normal is a wonderful thing.</div><div style="text-indent: 0.5in;">Special thanks to the Henson Family – Herb (aka Herbie as far as I am concerned), Michelle, Alyssa, & Anna for the Red Lobster Gift Card.<span style="mso-spacerun: yes;"> </span>I can’t remember the last time I cooked a meal from scratch in the past 40 days, so the gift card is VERY APPRECIATED!!!<span style="mso-spacerun: yes;"> </span>I can’t wait for you to all meet Garrett.</div><div style="text-indent: 0.5in;">Also would like to thank a fellow CDH mom Lindsay Kranz for the CDH t-shirt.<span style="mso-spacerun: yes;"> </span>I keep it in my car as a spare incase Garrett decides to decorate me with spit-up at the hospital.<span style="mso-spacerun: yes;"> </span>It is always great to get to see you and Karlie – what a strong little CDH miracle she is!</div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com2tag:blogger.com,1999:blog-7212722051596434741.post-51158416221774786902011-05-30T11:37:00.000-07:002011-05-30T11:37:02.409-07:0040 Days......you must be kidding me! We have been here FOREVER!<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: 12pt; line-height: 115%;"><span style="font-family: Calibri;">Garrett is doing just fine – I know I took 2 days off from updating the blog.<span style="mso-spacerun: yes;"> </span>We just had a very busy Memorial Day weekend, hence the hiatus.</span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: 12pt; line-height: 115%;"><span style="font-family: Calibri;">Nothing very new to report.<span style="mso-spacerun: yes;"> </span>They CONTINUE to wean his morphine and oxygen; however he is still on both.<span style="mso-spacerun: yes;"> </span>We are not sure if he will come home on oxygen or not.<span style="mso-spacerun: yes;"> </span>There has been talk about when Garrett will go to the “zoo”.<span style="mso-spacerun: yes;"> </span>Apparently they do not use the “H” word (home) here in the NICU as babies tend to regress when they do! Hahahah.<span style="mso-spacerun: yes;"> </span>So they talk about them going to the “zoo”.<span style="mso-spacerun: yes;"> </span>I find that very entertaining.<span style="mso-spacerun: yes;"> </span>Though there has been some talk of it, I know it is not in the immediate future.<span style="mso-spacerun: yes;"> </span>We still have a list of things to accomplish before little Garrett will be taking any trips to the zoo. </span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: 12pt; line-height: 115%;"><span style="font-family: Calibri;"><span style="mso-spacerun: yes;"> </span>I am very ready for the zoo whenever we can get him there!!</span></span></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com3tag:blogger.com,1999:blog-7212722051596434741.post-92125250402093762652011-05-27T12:34:00.000-07:002011-05-27T15:32:24.315-07:00Silence........(Day 37)<div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-size: 12pt; line-height: 115%;"><span style="font-family: Calibri;"><span style="mso-tab-count: 1;"> </span>Such a quiet room we now have.<span style="mso-spacerun: yes;"> </span>No med pumps beeping.<span style="mso-spacerun: yes;"> </span>No alarms from the vitals monitor (unless one of Garrett’s leads falls off or comes loose, which does happen occasionally).<span style="mso-spacerun: yes;"> </span>No alarms from the ventilator. No alarms from CPAP.<span style="mso-spacerun: yes;"> </span><b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;">Just a quiet, content sleeping baby………..</i></b></span></span></div><div class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;"><b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span style="font-size: 12pt; line-height: 115%;"><span style="mso-tab-count: 1;"> </span></span></i></b><span style="font-size: 12pt; line-height: 115%;">Special thank you to Shaun, Andrea, and Westin Gress.<span style="mso-spacerun: yes;"> </span>The lunch was great and I can’t wait to break into that gift basket.<span style="mso-spacerun: yes;"> </span>Westin is such a cutie; and SO WELL BEHAVED!<span style="mso-spacerun: yes;"> </span>My goodness!</span></span></div><div align="center" class="MsoNormal" style="margin: 0in 0in 10pt;"><span style="font-family: Calibri;">Trying out the NICU swing.</span></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqBPG4dv5mt2xDxJkKJaPneky09exsqdKqGcKeqiSh72oR-VaYgUOIpC29LhasoOD724frHRaNzWoeeATKcgyMvOeO8SboKPktaXklvUGJ1r1K1ISKKcjtw-q-IS4MHjAw2MtfmhemK2P9/s1600/100_4231.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqBPG4dv5mt2xDxJkKJaPneky09exsqdKqGcKeqiSh72oR-VaYgUOIpC29LhasoOD724frHRaNzWoeeATKcgyMvOeO8SboKPktaXklvUGJ1r1K1ISKKcjtw-q-IS4MHjAw2MtfmhemK2P9/s320/100_4231.jpg" t8="true" width="240" /></a></div><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQE2AVQe5GocYSCbCiCxGvdNsGB2FH9ke8hi0p0vbxjm_9X2z7E74bUOZSAcxwLijB8tKxUddTjzyO-RfCFeTPeunjq1e7EYh_AbwWBzycDsLLkNdg7u2D9eeiKnVMjSD8PASafFxzgM7M/s1600/100_4232.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQE2AVQe5GocYSCbCiCxGvdNsGB2FH9ke8hi0p0vbxjm_9X2z7E74bUOZSAcxwLijB8tKxUddTjzyO-RfCFeTPeunjq1e7EYh_AbwWBzycDsLLkNdg7u2D9eeiKnVMjSD8PASafFxzgM7M/s320/100_4232.jpg" t8="true" width="240" /></a></div><div class="MsoNormal" style="margin: 0in 0in 10pt; text-align: center;"></div>Jannahttp://www.blogger.com/profile/10872718652216256877noreply@blogger.com4